top of page

Video Library

The MHE Research Foundation, with our continuous collaboration with the Rare Bone Disease Alliance, is happy to provide this video of Dr Feldman's presentation "How to improve the quality of life in MHE; an Orthopedic perspective"

MHE Patient Testimonials

Learn how MHE has impacted people across the globe.  Thank you Clementia for putting together this video!

Vinny Eaton's Speech at Funtasia 2017!

Vincent Eaton brings down the house at Funtasia 2017!

2018 "Wings of Hope" Classic Golf Outing Recap

The "Wing's of Hope" Golf Classic was held in April of 2018.  Although it was a bit chilly, it was a great day for all involved!

Opening remarks from the 5th International Research Conference May 19-22 2016 in West Palm Beach Florida

The Opening remarks from The 5th International Research Conference on Multiple Hereditary Exostoses (Multiple Osteochondroma) was held at the Paley Institute at St. Mary's Medical Center in West Palm Beach, Florida, May 19-22, 2016. As a result of the MHE conference new classes of drugs to treat MHE are now in development in many labs.

Maurizio Pacifici, PhD - Pathogenic Mechanisms of MHE

2017 "Wings of Hope" Classic Golf Tournament Recap

Our recap of the 2017 "Wings of Hope" Golf Classic.  The weather couldn't have been better and we raised almost $30,000 for MHE research!  

Opening remarks from Sarah Ziegler Foundation Vice President during the 2012 MHE Research Conference

Opening remarks from Craig Eaton Foundation President during the 2012 MHE Research Conference

Dr. Kevin Jones introduction and Dr. John Dorman's presentation during the 2012 MHE Research Conference

Dr. Dror Paley's presentation during the 2012 MHE Research Conference

Disclaimer, some of the sides contain operative pictures, also due to technical issues some of the x-rays located in this presentation are dark unfortunately were unable to fix this

Yu Yamaguchi PhD's research on "MHE" reveals new insights into autism, these findings also provide new insights for the general autistic population

Roles of Heparan Sulfate in Mammalian Brain Development: Current Views Based on the Findings from Ext1 Conditional Knockout Studies

Panel Discussion - 2013 Rare Disease Day Symposium

Please reload

bottom of page