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When trying to locate a Orthopaedic physician, you may want to ask how many cases of this disorder have he/she seen in their years of medical practice, as MHE is a rare disorder and the more experience they have the better.


MHE Foundation's Advisory Board:  Click Here

American Academy of Orthopaedic Surgeons Directory:  Click Here

The Pediatric Orthopaedic Society of North America Directory:  Click Here


Musculoskeletal Tumor Society Orthopaedic Oncologist Directory:  Click Here


Shriners Hospitals for Children:  Click Here.

Shriners provides the highest quality care to children with neuromusculoskeletal conditions, within a compassionate, family centered and collaborative care environment. This mission is carried out without cost to the patient or family, and without regard to race, color, creed, sex.  

Please contact Sarah Ziegler at when you have obtained an appointment so the MHE Research Foundation can also assist you.  


The Limb Lengthening and Reconstruction Society Directory:  Click Here

"APTA" American Physical Therapy Association:  Click Here



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