Our son Dawson was diagnosed with MHE on his 3rd birthday.  He will be turning 9 on January 5th, 2022.  Currently, the only treatment for his disease is orthopedic surgery to correct the bone growths that occur due to his condition.  MHE affects only 1 in 50,000 people and due to the rarity of this disease, medical research and research funding is limited.  

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Last year you helped us raise over $30,000 for MHE research which was the most we've ever raised!  Since the Clementia trial was discontinued, we've been pursuing a few other treatment options in the early stages of development which are showing some good early signs.  The entire community is hopeful with our progress, but we still need your help to continue this fight. 

 

That is why we will be continuing on in our pursuit to fundraise for Dawson's condition and will host our 6th annual Golf Outing at Talamore Country Club in Ambler, PA. All funds will go directly to the MHE Research Foundation which is organized by all volunteers and was established by a family whose son also has MHE.  

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We've held prices firm for the last 5 years, but this year our costs to put on this event have increased and we will need to make slight increases.  Our goal is to make as much money as possible for research so I hope you understand and will continue to support us.   

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Please consider one of our sponsorship opportunities and join us for another great day!  Your help goes a long way towards supporting not only our family, but the MHE community at large. 

 

Thank you!

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Sincerely, 

Chris and Jackie O'Brien

Board Members

MHE Research Foundation