Our son Dawson was diagnosed with MHE on his 3rd birthday.  He turned 12 on January 5th, 2025.  Currently, the only treatment for his disease is orthopedic surgery to correct the bone growths that occur due to his condition.  MHE affects only 1 in 50,000 people and due to the rarity of this disease, medical research and research funding is limited.  

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Last year you helped us raise close to $30,000 for MHE research!   We've seen some success with the research YOU HELPED FUND and now we're waiting for the next phase of development so we can pursue further development in humans.  In the meantime, there are some other avenues worth pursuing and we need everyone's continued support to eradicate MHE once and for all!  

 

That is why we will be continuing on in our pursuit to fundraise for Dawson's condition and will host our 9th annual Golf Outing at Talamore Country Club in Ambler, PA. All funds will go directly to the MHE Research Foundation which is organized by all volunteers and was established by a family whose son also has MHE.  

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Please consider one of our sponsorship opportunities and join us for another great day!  Your help goes a long way towards supporting not only our family, but the MHE community at large. 

 

Thank you!

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Sincerely, 

Chris and Jackie O'Brien

And the MHE Research Foundation