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Meet the Board of Directors

The MHE Research Foundation is a non-profit organization exempt from Federal Income Taxes under Section 501(c)(3) of the Internal Revenue Code. All donations made to our foundation are fully tax deductible and greatly appreciated. All donations go to help this foundation in its efforts to the further understanding of MHE through research and education.


The MHE Research Foundation is a 100% voluntary organization, no salaries or personal benefits are paid to anyone.

Craig A Eaton Esq, President

Sarah Ziegler, Vice President

National Director of Research & Coordinator of Clinical Information, Executive Director of the National MHE Research Registry, Liaison Officer, University of Antwerp, Department of Genetics, Belgium Liaison Officer, Rizzoli Orthopaedic Institute, Genetics Unit, Bologna Italy

Susan Eaton, Vice President Fundraising and Patient Advocacy

Vincent Paul Eaton, Associate Director of Fundraising and Patient Advocacy

Robert Ziegler, Event Photographer

Chris O'Brien, Foundation Webmaster

Jackie O'Brien, Associate Director of PA Golf Outing

Stacey Gilbert, Associate Director of the Warriors MHE Run

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If there are any questions about the content of this website, please contact the webmaster

Chris O'Brien at

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