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Sanford Burnham Prebys Medical Discovery Institute La Jolla, California

Feb 28, 2019 - March 1st, 2019

Co-Organized: Yu Yamaguchi and The MHE Research Foundation  

Hank Kronenberg, MD, PhD,: Keynote Note Speaker, Bone Development

David Feldman, MD: Clinical Management of MHE/MO and An update on the MHE/MO Clinical Trial at the Paley Institute. 

Yu Yamaguchi, MD, PhD,: MHE/MO Research.

Maurizio Pacifici, PhD,: MHE/MO Research.

Judith Bovee, MD, PhD,: MHE/MO genetics/Chondrosarcoma.

Ellen Shore, PhD,: FOP (Fibrodysplasia ossificans progressiva).  

Fei Shih, MD, PhD,: Clementia Where the clinical trials stand in MHE/MO and FOP.

Benjman Alman, MD,: Olliers Disease.

John Graham, MD,: Larsen Syndrome.

Matt Warman, MD,: Osteogenesis Imperfecta, Albers-Schönberg disease.

David Ornitz, MD, PhD,: Achondroplasia: Development, pathogenesis, and therapy.


March 1st, 2019: Meet and greet family gathering (Drs. Yamaguchi, Pacifci and Feldman are looking forward to spending time with you answering all of your questions and learning about your personal experiences)

Registration is FREE.  To Register, please CLICK HEREPlease put "MHE Family" in Company / Organization and indicate whether you plan to stay March 1 for the meet and greet for families.


The MHE Research Foundation did not block rooms for this event, so please make your own hotel arrangements. We hope you can join us for this special day!


For more information, please email Sarah Ziegler at


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